PKU.com Community Discussion Forum Parent support New to PKU Reply To: New to PKU

#7006
Avatar of Sarah
HappyMom
Member

One thing that makes it easier is communication. My husband and I use a small dry erase board on the fridge to leave eachother notes about what Easton has had for Phe’s that day. I’m sure something similar with a caregiver would be useful.
Sarah

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional