Community Discussion Forum Parent support New to PKU Reply To: New to PKU

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Oh yea and the question does counting PHEs for the meals get any easier…. I asked my sister that the first day I moved in with her. I know in the beginning it was but now its easier cuz after doing it for so long it’s easy. And if your unsure about something they always have that book (I used that alot until I learned everything and if I was unsure in a spot I couldn’t look in the book I would just get something I know was safe) It’ll get easier in some areas so hang in there…. If I can do it and only in the 3 years I’m sure you can. It’s a struggle and the more they are finding out about PKU the better. My sister had my oldest when PKU was still really unheard of. She was selling bread machines to help for research on PKU.

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