PKU.com Community Discussion Forum Adults and PKU adults and pku Reply To: adults and pku

#7039
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Anonymous

hmm i will have to do some digging to answer that one. i have always ordered mine though a clinic, cause they have to write a prescription for me and then it gets shipped to my house.hmmmmm????? i will try to find out this week for u. and sorry i haven’t been here either i have been really sick. and what do u mean 45gs? i get 525 mg of phe or 36 exchanges! so that seems really small to me,. and when i had a pg scare last week they moved me too 200 and it was still alot of food. i couldn’t imajin 45gs

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