Community Discussion Forum Adults and PKU adults and pku Reply To: adults and pku

Avatar of Kerrie
kerrie mac

My dietitian wants me to have a total of 46 grams of protein and only 500mg of phe. I don’t know about the whole 46 grams of protein a day. I think that is all other protein other than phe, and also the 500mg on top of that ( of phe). I talked to my dietitian and she is writing a Rx for all the formula and the low pro foods. You know we can eat mac and cheese from cambrooke foods. It has about 32mg of phe for one packet. I don’t know about you but I love mac and cheese. I miss that a lot. Talk to you later. Kerrie

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional