PKU.com Community Discussion Forum Adults and PKU adults and pku Reply To: adults and pku

#7069
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BreaMarie91
Member

Hey Kerrie your phe level is read in mg/dl. I think some people read their levels in micromoles which is the higher numbers. And yes the levels are supposed to be between 2-6mg/dl, so an 11 really isn’t that bad.
I do get my formula/some foods from my clinic (more specifically the clinic’s warehouse which is right by it), but that is because Wisconsin is required to provide low protein food. I’m not sure what the laws in California (that’s where your from right?) are. nBre

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