Community Discussion Forum Parent support Anyone know about Kuvan? Reply To: Anyone know about Kuvan?

Avatar of Breanna

I’m actually on Kuvan. It has helped a lot because before Kuvan I was allowed 300 mg of phe and I’m not up to 1030 mg! The only problem is now I’m finding it hard to get all that phe in because honestly I like my low protein foods better. And I’m only getting 650mg of phe through food and the other 380 is coming from milk mixed into my formula. Lol, so I can’t even get in double what I was allowed before.
What would you like to know about Kuvan? I’ll help anyway I can. nBre

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