Community Discussion Forum Parent support Anyone know about Kuvan? Reply To: Anyone know about Kuvan?

Avatar of Breanna

I know what you mean. Like Jakob it has been hard for me to get all my phe in. BUT that is probably because I haven’t tried to many new foods lol. I’ve tried regular bread, pasta and tortilla. But like I said, I don’t even like regular pasta. At the end of the day I always have to add regular milk to my formula to get my phe in.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional