Community Discussion Forum Adults and PKU PKU at 50 Reply To: PKU at 50

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My b/f is 43 and has PKU – he has to drive almost 4 hours to a clinic twice a year. Otherwise he just sees the community dietician monthly. We think there may be 1 other adult this dietician sees but we really have no one for support or to talk to about it. We also don’t have access to low-pro foods here; it can be tough.

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