Community Discussion Forum Parent support Section 504 Plan or IEP at School for PKU Reply To: Section 504 Plan or IEP at School for PKU

Avatar of rebecca

Im new to this site so I don’t fully understand how it works but I have a 7 yr old with classic pku. He is in public school and the school has accomodated his diet by verbal agreement. I met with the dietician and we made a two week rotating menu and they supply everything on it except the formula. I haven’t had to write up a 504 yet thankfully. Too many papers! If we need changes I just modify and send them changes. It was a struggle to get them to understand everything. I think the less they know the better. Just let them know the basics of the diet. The ladies in the cafeteria get confused if I try to explain in depth so I just say do it this way…
I dont know if this helps but it works for us.

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