Community Discussion Forum That’s PKU life! Need help with cheating son Reply To: Need help with cheating son

Avatar of Breanna

It doesn’t bug me at all that I have PKU. I’m on Kuvan now and to be honest, a lot of the foods I’ve tried I don’t really like. I’ve really only tried bread, pasta and tortillas. They’re okay I guess, but I prefer my low pro stuff. My 9 year old sister on the other hand wants nothing to do with her diet. She goes through phases where she tries really hard to watch what she eats and she’ll ask me for help and then she’ll stop and eating the whole world without telling my mom. Could you maybe talk with your clinic? I don’t know if you have some sort of PKU organization, but that is a great way to meet others. Also, have you ever been on the PKU listserv? There are so many PKU families on there that it’s easy to find others in your state.

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