Hi Jennifer – i`m Mandy, from Es*** in UK (very much in UK). I am a teacher and have PKU. Strangley enough in the past 3 years I have also taught 1 child with PKU and 1 child whose mum had PKU. Hope your little one is doing well. (so mcuh for 1 in 20,000) Im hoping for my own children some day and on the maternal diet now (so boring but essential). If you have any questions id love to try and help. I take the lophlex and really like it in comparison to the Aminogram which I was on for 30 years !! It`s so practical stick in yourbag or fride – dead easy. Love the Lophlex but it made one of my other PKU pals really dizzy so she had to come off it.