Community Discussion Forum Adults and PKU Formula Survey Reply To: Formula Survey

Avatar of Breanna

Yep, I have classical PKU. Kuvan is nice. I went from 300mg of phe to 1030mg! For the most part I’m eatting regular bread and tortillas now. I haven’t really tried a lot of other foods and the foods that I have tried I like our low protein versions better.
If you try Kuvan I hope you respond!!! nBre 16 CPKU

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