Community Discussion Forum Adults and PKU Anyone on Kuvan and Responsive? Reply To: Anyone on Kuvan and Responsive?

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I am! Before Kuvan I was allowed 300mg of phe and now I’m up to 1000mg of phe.
I haven’t changed much with my diet. I’ve started eating regular bread instead of low pro and regular tortillas. On average I think I actually eat 650mg of phe and I get the other 350 by adding milk to my formula at the end of the day.

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