PKU.com Community Discussion Forum Parent support phe levels for nonpku or hyperphe 6 wk old Reply To: phe levels for nonpku or hyperphe 6 wk old

#7214
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cjqa2007
Member

Personally I would push to have the baby tested again in a week or so, the blood phe amount should show a definate increase if on normal diet. I would rather be safe than sorry, My son’s levels have never been higher than a 7 and that was at 2-3 weeks old. States are all different as to what the values have to be to consider a baby diagnosed as hyper phe or pku. So your state may be one of the ones where the blood phe amount has to be higher. Good luck!

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