PKU.com Community Discussion Forum Parent support Anyone know about Kuvan? Reply To: Anyone know about Kuvan?

#7248
Avatar of Breanna
BreaMarie91
Member

When I first started Kuvan I did have problems sleeping. For probably 2 weeks I went from never sleeping at night to wanting to sleep all day. BUT we’re pretty much 100% sure that is just because of the quick drop in my phe levels. Since I got my levels stable again I’ve been perfectly fine! Good luck with Kuvan! I hope it works for you.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional