Community Discussion Forum New to PKU Questions Reply To: PKU Questions

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Your probably hyperphe. Hyperphe people are able to eat much more then people like me, who have Classical PKU. Sometimes it’s enough that you don’t have to monitor your diet, that’s probably your case. Someday when you decide to get pregnant you might need to follow the diet, but I doubt it would be very strict. If your phe levels aren’t exactly where they need to be while your pregnant it can effect the baby in a lot of dangerous ways (mental retardation, possible miscarriage, microcephaly etc). But for now I wouldn’t worry. When you were born your levels were probably low enough on a normal diet that you didn’t need the diet. Ask your parents about it! They should be able to tell you why your not on the PKU diet. nBreanna 16 CPKU

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