PKU.com Community Discussion Forum Parent support Anyone know about Kuvan? Reply To: Anyone know about Kuvan?

#7258
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BreaMarie91
Member

I’m glad to hear your son’s responding! Let us know how much more phe he’s allowed when you figure it out. I know figuring out phe tolerance is a long process because we just figured out my new tolerance about a month ago…and I started Kuvan in October!! nBre

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