PKU.com Community Discussion Forum Parent support Anyone know about Kuvan? Reply To: Anyone know about Kuvan?

#7262
Avatar of Breanna
BreaMarie91
Member

I agree, just keep giving different formulas a try. Some people just don’t like some of the formulas because it’s not what they’re used to. For example, me and my sister Erica (she’s 9 and the second with PKU out of soon-to-be 8 kids) have completely different tastes in formulas! She has been drinking Phenex 2 unflavored since she was two and I’ve gone through more formulas then I can count in the past 17 years. Anyway, we went on vacation when I was around your daughters age and we forgot my formula!! We had to get formula shipped to us in Florida because I just couldn’t drink my sisters formula.
Do you mind me asking which formulas she’s tried so far? Maybe I could suggest some other ones. nBreanna

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