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#7265
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vlynch
Member

2 of my husbands siblings have PKU. Don was on the diet until age 5. He suffered with mental retardation but was functional. He had is own apartment, paid bill, shopped, cooked..He died recently of a rare disease called Amyloidosis at the age of 50. Bree, now 42 was never on the diet and is also retarded. She is less functional, can’t cook, read, write..My husband and I will soon be caring for her as my inlaws health fails rapidly. My first question is this..If Bree continues to eat anything she wants which is lots of meat,eggs,and cheese, will her brain damage continue or is the damage sort of complete??? I am trying to educate myself before she comes to live with us. nThanks — Jen

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