Community Discussion Forum Adults and PKU Anyone on Kuvan and Responsive? Reply To: Anyone on Kuvan and Responsive?


BreaMarie91, That is great that you are responsive to the Kuvan. I’m on day 3 of the Kuvan trial, I’m not sure if I can tell if I’m responsive or not – My diet has been so strict for the past 5 days and it feels like I’m not eating anything. At 300mg phe per day was recently cut from 600mg phe/day which amazingly allows for much more food in my diet. Did you feel anything during your trial, I have noticed that my mood has been good for the past two days of taking Kuvan, but I can’t say its not do to the more strict diet. I won’t know if I respond until after the trial, but any advice or information you have about your Kuvan experiece would be great. Thanks!!

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