PKU.com Community Discussion Forum Parent support I’m new to all of this. Reply To: I’m new to all of this.

#7288
Avatar of Breanna
BreaMarie91
Member

As babies grow their tolerance for phe does go up, but so does their appeitite. I honestly couldn’t tell you if she would ever need a restricted diet or not. I’m assuming that if her level is around 4 right now, she’ll need some sort of a low protein diet. I’m allowed 1030 mg of phe which is a lot more then the 300 mg I was allowed before (I’m on the drug Kuvan) and I still have to watch what I eat because sometimes I do go over.
I’m not sure about formula/foods. In Wisconsin formula and some foods are provided, but I know they are expensive. nBreanna

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