Community Discussion Forum Adults and PKU Anyone on Kuvan and Responsive? Reply To: Anyone on Kuvan and Responsive?

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Im on kuvan trial – having 13 tabs a day and eating completely normal diet. Fish, dairy … levels have gone down form about 1200 to 500 which is a safe range, and a great result.
In regards to Phe measurement- not sure how you work it out in US.
will be coming off tril soon though as I want tohave another baby.

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