PKU.com Community Discussion Forum Parent support Anyone know about Kuvan? Reply To: Anyone know about Kuvan?

#7306
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krsharpe
Member

My daughter is only a 1 yr. old (hyper phe), so we have a few years to go before she can even be considered for Kuvan-but I was wondering what the doctors and dieticians say about even adding meat/fish to the diet? If you are already used to eating a certain way, is it hard to add in things that were forbidden before? Also, are many people experiencing all/any of those side effects?

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