Community Discussion Forum Parent support Anyone know about Kuvan? Reply To: Anyone know about Kuvan?

Avatar of Katie

My daughter is only a 1 yr. old (hyper phe), so we have a few years to go before she can even be considered for Kuvan-but I was wondering what the doctors and dieticians say about even adding meat/fish to the diet? If you are already used to eating a certain way, is it hard to add in things that were forbidden before? Also, are many people experiencing all/any of those side effects?

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional