Community Discussion Forum Adults and PKU Anyone on Kuvan and Responsive? Reply To: Anyone on Kuvan and Responsive?


I should be finding out how I have responded to the Kuvan. I will say this… I can focus and process complex situations much quicker than the past. As an operations manager at my company, I have realized that I am much more clear headed on the Kuvan… Now – again – I can not tell if its the 300mg Phe Diet or the Kuvan and my dietician won’t tell me how my blood levels look until sometime this week. Prior to Kuvan trial – my blood levels were at 6.4 and 6.7… A 40% drop would bring me easily into the normal range… We’ll see…

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