Community Discussion Forum Adults and PKU Any PKU moms to be out there? Reply To: Any PKU moms to be out there?

Avatar of Breanna

Hey mothertobewannabe,
You do need to be on diet to have a baby. If you don’t the high phe levels can cause a lot of problems for your baby. I was told last summer when I went to PKU camp that whatever amount of Phe your taking it will be 1.5 times greater for your baby, which is why phe levels during pregnancy are generally suppose to be between 2-4 mg/dl (or 120-240 umol/L). If your not on the diet during pregnancy and your levels are high your baby could have a lot of problems like congenital heart defects, microcephally (small head), mental retardation and the list goes on.
Basically, it’s better to be on your diet.
Breanna 17 CPKU

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