Community Discussion Forum Adults and PKU Anyone on Kuvan and Responsive? Reply To: Anyone on Kuvan and Responsive?

Avatar of Breanna

Hey, I’m crossing my fingers for you! I hope you find out that your responding to Kuvan. When I started Kuvan last October I was starting Kuvan through a study and so I didn’t get to know if I responded for a whole month. I did weekly levels and I almost went insane not knowing them every week. My dietitian told me later she thought I was going to break into the clinic to find my levels .

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