Community Discussion Forum Adults and PKU Any1 from australia and in their 20’s with PKU? Reply To: Any1 from australia and in their 20’s with PKU?


My name is aaron and I just recently joined the this morn I feel the same way that most of you do that I am the only one with this but it is nice to know now that Iam not and have support around the world I have just sent a complaint form to my state ins commissioner to battle against insurance companies that will not cover the formula the problem is that the ins co is labeling it as a supplement which it is NOT! it is a medicalnecessity I am working with my doctors and nutritionists but I need everyone’s support out there with PKU to help I cannot do it by myself. Iam in AL if that helps

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