PKU.com Community Discussion Forum New to PKU.com How much phenylalanine in a piece of gum? Reply To: How much phenylalanine in a piece of gum?

#7346
Avatar of Randy
murphy
Member

Thanks for the info. After his first year life, the Dr’s said that his level would not change and there was no need for any kind of follow-up. I did not know one’s levels could change as you get older. nBut I will have him tested again. I think his levels hovered around a n6 or 7 if I remember correctly. When he was 14 or 15 years old we checked again and it was still in the 6-7 range. What is the acceptable limit now? Before any dietary restrictions are needed?
thanks again.

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional