PKU.com Community Discussion Forum That’s PKU life! Looking For Pku Teen Friends Reply To: Looking For Pku Teen Friends

#7357
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PhilipW
Member

Hello everyone,
I have posted a new video on youtube.com/projectkuvan. This new video details my experiences with Kuvan 14 days into my month long trial of the drug. Information in the new video includes, the results of my first blood test while on Kuvan, any side effects/concerns, and whether or not I have noticed any difference since starting the drug.
To view the video Visit:
http://www.youtube.com/projectkuvan
also, I am still looking for others who are willing to participate in any way. nPlease contact me for more information:
Philip Welch

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