Community Discussion Forum Adults and PKU Anyone on Kuvan and Responsive? Reply To: Anyone on Kuvan and Responsive?

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Hello everyone,
I have posted a new video on This new video details my experiences with Kuvan 14 days into my month long trial of the drug. Information in the new video includes, the results of my first blood test while on Kuvan, any side effects/concerns, and whether or not I have noticed any difference since starting the drug. nTo view the video Visit: nalso, I am still looking for others who are willing to participate in any way.
Please contact me for more information: nPhilip Welch

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