PKU.com Community Discussion Forum New to PKU.com just like me Reply To: just like me

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jgtied2
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Hi Iam John, I have been off the Diet for many years (9yrs old to now 42), Iam starting up the diet again, but before that I am trying the Kuvan without changing my diet.
I have 2 childern that are without PKU, glad for that. Iam just looking for any information that anybody could give me, ie: if Kuvan has worked, what do you experience when you don’t follow the diet, just any insight, since it has been many years for me so what I think is normal my not be. It is nice know that there are many others with the same questions as I have had, and now there is a place that we can all share our experiences.

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