Community Discussion Forum Parent support I’m new to all of this. Reply To: I’m new to all of this.

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My son, Denver, just turned 11 mos today and he has classic PKU. His levels have changed alot throughout his short little life. When he was first diagnosed it was up to 34 and just recently it went down to .08. The medicated formula brought his level down when it was high but it is a challenge to find the recipe to get it higher. It seems that the more active Denver gets the faster he is burning the phes therefore making it a little stressful. My son has no development issues… He almost walking!!! Just take one day at a time and I promise you will get through it

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