Community Discussion Forum Adults and PKU New to Kuvan and 42 year of age Reply To: New to Kuvan and 42 year of age

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Since there are so many different PKU mutations doctors can’t really say if all people with hyperphe or all people with Classical PKU will respond. I have classical PKU and I went from being allowed 300 mg of phe (or 20 exchanges) to 1000 mg of phe (or about 68 exchanges). So I responded great! You just have to give it a try and see what happens.
Lol, I know what you mean. I’ve been on diet all my life and will never go off but I’m not perfect.

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