PKU.com Community Discussion Forum Parent support Anyone know about Kuvan? Reply To: Anyone know about Kuvan?

#7399
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mayrogers13
Member

Marie, it is not for people with a high tolerance. It is for people who have high levels of phe, those who have trouble sticking to the diet. Even then, there is only a 25 percent chance that you will be responsive at all to the medication as it is only for BH-4 repsonsive PKUers.

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