Community Discussion Forum Parent support I’m new to all of this. Reply To: I’m new to all of this.

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My advice is to introduce her to the formula as soon as possible. I have been taking it since I was a few days old and even then, I hated taking it when I was younger. The more accustomed she is to eating regular foods the harder it will be to take them away from her. If she truly does have PKU she will indeed need to go on the diet. There is no way to keep her levels low enough as she grows older than to stick to the diet and take medication. I hope this was helpful. Meaghan – 19 CPKU

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