PKU.com Community Discussion Forum What’s the Phe? Levels of classic and mild pku Reply To: Levels of classic and mild pku

#7403
Avatar of Breanna
BreaMarie91
Member

It might just be that he isn’t getting enough baby formula/breast milk. My sister was born on the 25th and she has PKU. Her level at birth was 8.4mg/dl and our doctor said she has Classical PKU, which makes sense because that’s what my other sister and I have. My mom got her levels down to 4.9mg/dl in two days, but that’s probably because she has done this twice before.
I think wither a person has classical PKU or not is determined by their phe level from the newborn screening. nBreanna

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