Community Discussion Forum Generation PKU Friends? Reply To: Friends?

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Kuvan isn’t really a cure, more like another treatment option. About 30% of people with PKU respond to Kuvan and if you are a responder it pretty much helps your body break down the phe better so that you can eat more without higher phe levels. I think as of right now it is only avaiable in the US.
I’ve been on Kuvan for almost a year now and before starting my tolerance was 300 mg of phe (20 exchanges). I’m now allowed 1000 mg of phe (66 exchanges). nBre

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