THank you for your repsonse- and more importantly congrats on your healthy baby girl! I guess for me the question remains the same. There are stories of blood levels being at 15+ and people having seizures and other severe complications and the fact for me remains the same. I have no negative side effects to speak of and my lowest level over a decade span was a 12. SO…its hard to say that with all the resoucres that are there for children why there arent the same for adults. We have just as many issues ( if not more) then a child. nPart of that I know is that there are not many functioning adults with PKU. We are some of the older adults who have adhered to a life long diet and while I am grateful for that, I wish science and support would catch up to my generations needs.