Community Discussion Forum Parent support how soon? Reply To: how soon?

Avatar of Breanna

If your son has PKU being diagnosed at two weeks is okay. If he has PKU he will start the metabolic formula and he will be okay. I was not diagnosed until I was 9 days old. My two younger sisters who have PKU were diagnosed at 1 week and 4 days old because my mom knew that they could have PKU, so she had the blood tests rushed.
If you ever need help I will be more then happy to help! nBreanna 17 CPKU

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional