Community Discussion Forum Parent support how soon? Reply To: how soon?

Avatar of Breanna

I understand that waiting is probably very hard. My sister Gena is 6 weeks old and my mom hated waiting for the blood tests to come back when she was first born. If he does have PKU he will be okay I’ve talked to others who have PKU that were diagnosed at around 20 days old and they are doing ok. nThe best of luck to you and you family!

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