Community Discussion Forum New to anyone with pku babies Reply To: anyone with pku babies

Avatar of Breanna

Hey Alina, nCan I ask why you choose not to tell your family about your sons PKU? That’s your decision of course, but I have always thought it is easier when you have family to support you. I have Classical PKU, so I am on a restricted diet. 17 years later and PKU is litertally just a way of life for me and my parents, siblings, cousins, aunts/uncles, grandparents etc.
If your son’s levels are about 2mg/dl right now they could rise, then again only time will tell. Meat has A LOT of phe in it! nAnyway, if I can ever help just let me know . nBreanna

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