PKU.com Community Discussion Forum Parent support Low Levels in CPKU Preemies HELP PLEASE Reply To: Low Levels in CPKU Preemies HELP PLEASE

#7471
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monika26
Member

i also have a 3mth old and his levels have been low for most of the 3 mths like really low at 0.2 and then once they got it up to a 12 and then it dropped again to .2 so we have never really had him in range..the genetic doctors here recommended he have a DNA test done which will let them know if he has mild or severe PKU because at this point we still dont know..so we did and we are now waiting on results ..6-8 weeks

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