PKU.com Community Discussion Forum Parent support Low Levels in CPKU Preemies HELP PLEASE Reply To: Low Levels in CPKU Preemies HELP PLEASE

#7477
Avatar of Breanna
BreaMarie91
Member

Monika, I hope you figure out why your sons levels have been so crazy. Have you guys tried to add just a little bit of phe at a time, like maybe 25 mg of phe at a time or something rather then 100 mg?
Also, do you mind me asking, out of curiousity, where you guys live in Wisconsin? We live in Franklin (Milwaukee county) and we go to Children’s Hospital for our PKU appointments. nBreanna 17 CPKU

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