Community Discussion Forum Parent support Low Levels in CPKU Preemies HELP PLEASE Reply To: Low Levels in CPKU Preemies HELP PLEASE

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thats so funny my sons level is at 3 right so happy we finally found a range for him and he is tolerating about 270mg of phe a day..i take my boy in twice a week for his blood so happy to hear your sons level is where it needs to be..finally for both of us..i live in wisconsin and was in california just once with my husband..i would love to go back..maybe we can meet you have a myspace page? i do and there is a group of Pku people on there too..

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