PKU.com Community Discussion Forum Parent support Low Levels in CPKU Preemies HELP PLEASE Reply To: Low Levels in CPKU Preemies HELP PLEASE

#7528
Avatar of Monika
monika26
Member

thats so funny my sons level is at 3 right now..im so happy we finally found a range for him and he is tolerating about 270mg of phe a day..i take my boy in twice a week for his blood work..im so happy to hear your sons level is where it needs to be..finally for both of us..i live in wisconsin and was in california just once with my husband..i would love to go back..maybe we can meet someday..do you have a myspace page? i do and there is a group of Pku people on there too..

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