Community Discussion Forum Adults and PKU Any PKU moms to be out there? Reply To: Any PKU moms to be out there?

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Hi I’m new at this but I just wanted to chat about getting pregnant. I have pku obviously as do we all on here I would suppose or are familiar with it at least but I”m having a hard time and I don’t feel like my doctors are taking me seriously and I know how important it is to be on my diet during and before pregnancy and I”m just on the fine tuning part of getting my levels down. i”m pretty low now I think but some ideas to try would be nice. I got to a 3 which I’d be happy with but then the more I tried to maintain it the higher it got. Why? I’m not understanding the trick here. Any help?

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