Community Discussion Forum New to PKU and ANOREXIC Reply To: PKU and ANOREXIC

Avatar of Breanna

Like Ddraig I’ve always been small. I’m 17 and I have not yet reached the triple digits yet. We are pretty sure that my size has nothing to do with my PKU because my younger sister who will be ten on Friday has PKU and she’s average size for her age. The majority of my siblings (all seven of them) are small. nWe also don’t think my size is related to my diet because we thought by starting Kuvan I would gain some weight because I would be eating more natural protein…but I still the same size.

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