PKU.com Community Discussion Forum Adults and PKU Husband with PKU Reply To: Husband with PKU

#7603
Avatar of Holly
ddraigswife
Member

While I am also a bit new to this site, my husband is not. He has classical PKU and suffered through periods of not following is diet. Greatfully, he is back on track. We just returned from the Fall PKU Summit. The folks from Biomarin gave us a lot of information about what being off-diet or even not monitoring the diet can do.
I have a blog that is for the loved ones of PKU adults and Biomarin stated their suppoot for it during the Summit. It is just getting off the ground but it could help you and your husband as you see him through this time. http://www.ryanspkufoundation.org/HollysBlog.aspx

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