Hey there, I was so excited to see you respond . Thank you I am Borderline PKU so iam allowed 60 grams of protien a day.Just not from any meat or chicken or anything good.LOL I am a veggie,and eat regular cheese. Which is fortunate. I can also eat tofu as well,but over all i just count my protein intake. I have been on Phenex 2,but now my Dr. wants me to start Kuvan. I am a little nervous i don’t take pills well. I’ looking at about 40 to 60 a day. I get nervous cause i feel full off of just formula,and i tend not to eat. Which is not good. So i try to do my best.
I also have a team of Drs. for my Anorexia,but overall doin good.
Hey where do you live at? I am in Asotin Wa. town of 1100, and mostly children. I am the only one local with PKU. So i tend to have to educate the DRs. as well as my Dietition.LOL
Anyways talk to you soon. Take care, Friends, Tracie-PKU