Community Discussion Forum New to PKU cure? Reply To: PKU cure?

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Tracie are you sure you would have to take 60 pills? That sounds a bit fishy to me because Kuvan dosages are determined by weight. I am about 100lbs and I take nine pills (900mg dosage). This is the highest dosage for somebody my size (20mg of Kuvan/kg of weight).
I knew male adults who are obviously bigger then I am and they are on Kuvan. I’ve never heard of somebody taking more then 20 pills. Even then I personally don’t think that is too much to take because the pills are very small and I swallow all nine at once. If you don’t like to or cannot swallow pills another option is to dissolve the pills in water, apple juice and my dietitian recently mentioned Hunts Lemon pudding being safe.

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