PKU.com Community Discussion Forum New to PKU.com PKU cure? Reply To: PKU cure?

#7652
Avatar of Tracie
Tracie_PKU
Member

HI bre, nThats a great question. nMy PKU DR. believe it or not is close to 100 yrs old.,and quite honestly he makes me nervousnow.
I love him to death i’ve had him since 1969.
I’m wondering if i should seek out a new PKU Dr. nWhat do you think Bre?
When i was hospitalized 4 yrs ago that is when i started on PREKUNIL tabs,and i had to take 40 of those aday.(Which Bites)
I am not a pill taker.
What do you recommend?
Tracie-PKU

Quick Poll
Which of the following best describes you?
Parent/caregiver of an infant with PKU
Parent/caregiver of a child with PKU
Teenager with PKU
Adult with PKU
Grandparent of a child with PKU
Know someone with PKU
Healthcare professional